Growing Old with Prader-Willi Syndrome: Health and Safety Issues and Concerns Presentation with Barb Dorn

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Date(s) - 04/01/2016
10:30 am - 12:00 pm

UW Waisman Community Center


We continue to learn more about health and safety issues that affect adults with Prader-Willi syndrome (PWS) as they age. Most issues are not unique to persons with PWS, however we are seeing them occur at an earlier age than the nondisabled population. Topics covered will include:
1. Slow Gastric Emptying and Constipation,
2. Urinary Incontinence,
3. Low Bone Density – Osteoporosis
4. Mobility Challenges and Fall Prevention.
An overview of these topics will be presented along with measures to prevent, minimize and/or manage them will be shared.
Target Audience: Direct care givers, case managers and anyone who cares for the adult with Prader-Willi syndrome
When: Friday April 1st, 2016
Time: 10:30 – 12 noon
Location: Waisman Center Outreach Program
122 E. Olin Ave, Madison, WI
To Register: Go to:
Registration Fee: $12 for Dane Co. DD Service Providers/$24 any other
Objectives: Attendees will be able to:

  •  Share what researchers are learning about aging and persons with PWS.
  •  Describe normal aging issues for the following health concerns:


    •  Gastrointestinal system
    • Urinary Tract system
    •  Bone Density
  •  Identify aging issues and safety concerns for the adult with PWS
  •  Describe preventative and treatment strategies that can be utilized in supporting the aging adult with PWS

Barb Dorn, RN, BSN: Barb is a Registered Nurse who recently retired from the University of WI Hospital and Clinics – University Station Internal Medicine Clinic in Madison, WI. She has over 37 years of experience as a nurse. Over the past 24 years, Barb has served as the past president of PWSA of WI, Inc. and PWSA (USA). She has extensive experience as a consultant, advocate, educator and counselor for persons with PWS. She currently serves as a Consultant and Training Coordinator for PWSA of WI, Inc. She has created and contributed many articles and handouts on the care and management of persons with PWS especially in the areas of health and education. She has been a speaker at many conferences on topics supporting the person with PWS. Barb Dorn is the parent of two sons, Tyler age 28 and Tony age 30 who has PWS.