Become a member



With knowledge, support and understanding, persons with PWS can and do become valued members in our communities.  They need to be supported by parents, care givers and professionals who have the knowledge and tools needed to assist them in doing this.  PWSA of WI, Inc. provides a variety of services to make this possible.


A special thank you to Barb Dorn and Peggy Burns for the video Presentations and handouts below:

Activity Planning and Exercise for the Adult with PWS presented by Barb Dorn, RN, BSN
Download the Activity Planning and Exercise for the Adult with PWS Handout HERE

Nutrition, Diet and Menu Planning presented by Peggy Burns, RDN, CD
Download the Nutrition, Diet and Menu Planning Handout HERE


To support, educate and advocate for persons with Prader-Willi syndrome, their families and professionals in meeting the challenges of this disability.

PWSA of WI, Inc. was established in 1992 by a group of concerned parents of children and adults with Prader-Willi Syndrome. The organization is governed by a Board of Directors who are elected every two years, and employs a full-time Program Director. In addition, the organization relies greatly on the volunteer efforts of its members.

PWSA of WI, Inc. provides cost-effective, time-efficient measures to support, educate and advocate for persons with PWS and all who support them across the State of Wisconsin.

Our work includes:

  • Connecting families and professionals to resources in their communities and providing consultative and educational services as needed.
  • Advocating for persons with PWS by participating in residential, educational and other planning and team meetings.
  • Organizing parent and professional workshops and training.

The resources listed on this website are provided for informational purposes only. PWSA of Wisconsin, Inc. does not endorse any particular therapy or provider.

Upcoming events

  • No upcoming events


Vegetable Cabbage Soup 
(Serves 6)


  • 1 tablespoon olive oil

  • 1 medium yellow onion, chopped

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PWSA of Wisconsin, Inc. | 38 S Main Street #226 | Oconomowoc, WI 53066 | (920) 733-3077 |

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