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PWS Informational Handouts
Medical ALERTS!
Health
Dental Care for Children and Adults with PWS
Dental Problems in Children and Adults with PWS
Food SecurityFollow the Principles of Food Security
Food Safety: Locks and Alarms
Least Restrictive Environment
Medical
Anesthesia and Prader-Willi Syndrome
Central Adrenal Insufficiency
Fluid Retention (Oedema)
Growth Hormone and Prader-Willi syndrome Booklet - 2nd Edition
Hypothermia Prevention
Hypothyroidism (Low Thyroid Level)
Vision and Care of the Eyes: Birth to two years
Aspiration, Swallowing, and Choking:
Swallowing Problems in Infants (Aspiration)
Swallowing Function Study
GastroIntestinal (GI) Issues and Constipation:
Life Saving GI Evaluation Algorithm Chart
Risk of Stomach Necrosis and Rupture
A Comprehensive Overview of GI Issues in Prader-Willi syndrome
Constipation in Children with PWS
Constipation in Individuals with Prader-Willi syndrome
Gastroparesis
Hidden Gut Issues
Physicians Resource for GI Emergencies Brochure
Stomach and Intestinal Problems in PWS
Orthopedic Concerns:
A Primer on Scoliosis Surgery for Prader-Willi syndrome
Guidelines on Scoliosis Monitoring and Treatment for Children with Prader-Willi syndrome
Respiratory Health/Sleep Issues:
Pneumonia Vaccinations and PWS
Recommendation for Evaluation of Breathing Abnormalities Associated with Sleep in PWS
Respiratory Complications in Children with PWS
Respiratory Problems in Prader-Willi syndrome
Sleep Problems in PWS
Behavior
Education and Care
Information for Respite and Childcare Workers, and Camp Staff
Health Concerns and the Camper with PWS – Information for Camp Staff
Information for Schools, Educators, and Parents with Children in Schools
Anxiety, Frustration, and Anger in Students with PWS
Back to School Checklist
Best Practices in Support Levels for Students with Prader-Willi syndrome
Information for School Staff: Health Concerns and the Student with Prader-Willi syndrome
Information for School Staff: A Focus on Behavior
Information for School Transportation
Rare Toolkits webpage: Education Advocacy
Wyatt Special Education Advocacy Training