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PWS Informational Handouts
Medical ALERTS!
Health
Dental Care for Children and Adults with PWS
Dental Health in Children and Adults with PWS
Food SecurityFood Safety: Locks and Alarms
Client's Rights and the Medical Necessity for Food
Medical
Anesthesia and Prader-Willi Syndrome
Central Adrenal Insufficiency
Growth Hormone and Prader-Willi syndrome Booklet - 2nd Edition
Hypothermia and Prader-Willi syndrome
Hypothyroidism (Low Thyroid Level)
Puberty Hormones
Skin Picking
Water Intoxication
Aspiration, Swallowing, and Choking:
Swallowing Problems in Infants with PWS (Aspiration)
Hidden Swallowing Problems in Prader-Willi syndrome
GastroIntestinal (GI) Issues and Constipation:
Life Saving GI Evaluation Algorithm Chart
A Comprehensive Overview of GI Issues in Prader-Willi syndrome
Constipation in Children with PWS
Gastroparesis, Gastric Dilatation, with Gastric Necrosis and PWS
Understanding Gastric Motility and Gastroparesis in PWS
Orthopedic Concerns:
A Primer on Scoliosis Surgery for Prader-Willi syndrome
Guidelines on Scoliosis Monitoring and Treatment for Children with Prader-Willi syndrome
Osteoporosis Evaluation and Therapy in Prader-Willi syndrome
Psychiatric Concerns:
Mental Health and Behavior Changes
The Mental Health of People with Prader-Willi syndrome
Psychotropic Medication Tips
PWS Information for Psychiatrists
Pneumonia Vaccinations and PWS
Respiratory Complications in Children with PWS
Respiratory Problems in Prader-Willi syndrome
Behavior
Behavior Management Guidelines
How a Person with PWS Thinks
Mental Health and Behavior Changes
PWS Behavior and the Collaborative Problem-Solving Approach
Preventing Challenging Behaviors
Principles of Food Security
Strategies and Tips for Eloping
Tips for Creating a Positive Behavior Plan
Internet Safety - Tammie Penta Presentation Resources
Education and Care
Information for Respite and Childcare Workers, and Camp Staff
Health Concerns and the Camper with PWS – Information for Camp Staff
Information for Schools, Educators, and Parents with Children in Schools
Anxiety, Frustration, and Anger in Students with PWS
Back to School Checklist
Best Practices in Support Levels for Students with Prader-Willi syndrome
Extended School Year (ESY) for the Student with PWS in the State of Wisconsin
Information for School Staff: Health Concerns and the Student with Prader-Willi syndrome
Information for School Staff: A Focus on Behavior
Information for School Transportation
PWSA USA School Success Program
PWSA USA Customizable PWS Health Identification Card