Junior Advisory Board Bios

Kameron BoserKameron Boser

My name is Kameron Boser and I have an older brother, Kyle, who has Prader-Willi Syndrome. I attended my first PWSA-WI, Inc. event when I was three months old and my parents brought me to Hobby Day. As I got older I realized I wanted to take on a more active role so I started volunteering at various events and began fundraising for the walk-a-thon, raising over $1000 for several years in a row. When I am not volunteering for PWSA-WI, Inc. I am involved in the Nicolet High School FEAR (Future Engineers of American Robotics) team. I also enjoy hunting with my dad and spending time with my friends. It is an honor to be one of the original members of the Junior Advisory Board.

Makenzie GaulkeMakenzie Gaulke

My name is Makenzie Gaulke. I joined the Junior Advisory Board because I want to help support PWSA-WI, and also because my brother Greysen Gaulke has PWS. In my free time I enjoy playing sports. I play basketball, volleyball, and lacrosse. I also like studying biology, physics, chemistry, math, languages, etc. I’m so happy that I can support PWSA-WI and be on the Junior Advisory Board

Eva GlassEva Glass

Hi, I am Eva Glass, niece to Jamie Milaeger, and lucky sister of Josaphine Glass, both with who I get to share the world of Prader-Willi. My aunt introduced my sister and I to this amazing group who became my second family. Having a special needs sister of my own drives me to want to help make a difference with these amazing people. I feel blessed to have been asked to join the junior advisory board where I can put words into action. I am a freshman at Lake Country Lutheran High School where I enjoy my time not only in my classes but on the volleyball court or ski hill with my teams. I look forward to continuing to make changes in the world as I follow my dreams to become a NICU Nurse.

Josaphine GlassJosaphine Glass

Hi, my name is Josaphine Glass. My aunt Jamie Milaeger is on the PWSA-WI Board. I was introduced by PWSA-WI by volunteering to help my aunt with the Wisconsin Snowflake Ball. I enjoyed it so much I continued to volunteer, and I am now part of the Junior Advisory Board. In my free time I like to go rock climbing at Adventure Rock and take pictures. I have gone to Florida for the National Conference to volunteer with the YAP program and I am going again in 2019. Since being on the Jr Advisory Board I have realized how to love and respect everyone no matter who they are or where they come from. This is important to me as I have a sister with special needs.  The best part of being on the board are just being with people with PWS and having fun. Most of all meeting new people making a difference in their life no matter how big or little makes me happy. I want to keep being a part of this amazing board for as long as I can. 

Maya LueningMaya Luening

My name is Maya Luening. I have a sister that has PWS. Her name is Olivia and she is an awesome sister. My sister has been part of this program since she was a little kid. I love to bake sweets, and this is my first time being a part of this board. I also like to color and do fun crafts. I am so glad to be a part of this board.

Maddie TulaMaddie Tula

Hi, my name is Maddie Tula. My mom Kim works for PWHO, is on the PWSA-WI Board, and coordinates the YAP program for the National Convention. My mom started introducing me to Prader-Willi Syndrome when I was only 1 year old, by taking me to PWSA-WI events. I started helping at PWS events at a very young age and my involvement and passion continue to grow each year. I have been helping with the YAP program at the National Convention since I was 8 years old. In my free time I enjoy riding my horse, snowboarding, and hanging out with my friends. It is a great eye opener to life when you are with these amazing individuals. I am so thankful my mom has brought me into this community. I’m lucky to be one of the first four kids welcomed onto the Junior Advisory Board.

To nominate someone for our Junior Advisory Board click HERE

To apply for our JAB click HERE

For a description of the roles and duties of a JAB member click HERE

Families and Providers:

Resources listed on this website are provided for informational purposes only. PWSA of Wisconsin, Inc. does not endorse any particular therapy or provider. Be sure to talk with a trusted physician about what interventions and approaches are most appropriate for your child or person with PWS in your care.

PWSA of Wisconsin, Inc. | PO Box 324 Menasha, WI 54952 | (920) 733-3077 | progdir@pwsaofwi.org

Powered by Wild Apricot Membership Software