<%@LANGUAGE="VBSCRIPT" CODEPAGE="1252"%> Prader-Willi Syndrome Association of Wisconsin

WISCONSIN

 

 

 

 

PWSA of Wisconsin, Inc.

Prader-Willi Syndrome Association of Wisconsin, Inc.

a chapter of the Prader-Willi Syndrome Association (USA)

2701 N. Alexander St., Appleton, WI 54911-2312    

(866) 797-2947   wisconsin@pwsaofwi.org

 

PWSA of WI, Inc. provides cost-effective, time-efficient measures to support, educate and advocate for persons with PWS and all who support them across the State of Wisconsin.  Our work includes:

  • Connecting families and professionals to resources in their communities and providing consultative and educational services as needed

  • Advocating for persons with PWS by participating in residential, educational and other planning and team meetings

  • Organizing parent and professional workshops and training

services.htm goals.htm connection.htm events.htm resources.htm membership.htm contactus.htm

 

Health Information

& Other Resources

 

National PWSA(USA) Website

 

for Health Providers

 

After Hours Crisis Support

 

Medical Alert Information

 

Medical Home Portal for PWS

 

Resources for Families and Caregivers

 

Info-Share: Helpful handouts for families, caregivers and people with PWS


Upcoming Events

May 12, 2012:  Prader-Willi Syndrome On the Move.  May Awareness Walkathon at Fowler Park in Oconomowoc, WI   Save the date and plan on joining us!! More information to follow.

May 23, 2012:  The Role of Psychopharmacology in PWS.  Dr. Ken Herrmann, speaker. Waisman Center, Madison, WI 

August 25, 2012:  PWSA of WI - 12th Annual Golf Benefit, Windwood of Watertown Golf Course, Watertown, WI

November 3, 2012:  Planning for the Future - Strategies to Support Our Children's Lifelong Needs.  First English Lutheran Church - North site:  6331 N. Ballard Road, Appleton, WI

Ongoing Did You Know? Now You Know! Workshops


News

Snowflake Ball Photos Click here

Wisconsin e-group

Marcus Theaters Reel Movies for Real Needs

PWS Featured on Extreme Home Makeover - view full episode

Success Stories Archive

Good Morning America Feature on PWS

National Sibling Support Project

Events Photo Archive

Send us your photos!

 
 

May 12, 2012

 Click here to see pictures
from this year's event

 


Upcoming Training Session:

Is There a Role for Psychopharmacology in

Treating People with Prader-Willi Syndrome?

  May 23, 2012

Waisman Center, Madison, WI 

Click Here for flyer

2012 Camp Information

 

Information on Summer Camps for Persons with PWS

Health Concerns for the Camper with PWS

Persons with PWS and Camp - Questions to Ask

 

Wisconsin Chapter

Officers / Board of Directors for 2012:

 

PresidentCrystal Boser, Glendale, WI

Vice President:  Jackie Mallow, Oconomowoc, WI

Secretary:  Candace Lipski, Milwaukee, WI

Treasurer:  Dr. Thomas Hughes, Cassville, WI

Board Member: Don Dorn, Verona, WI

Board Member:  Bobbi Pogrant, DePere, WI

Board Member:  Melanie Ignatowski, Oconomowoc, WI

Program Director:  Mary Lynn Larson, Appleton, WI

Program Assistant:  Melodee Luening, Grafton, WI


Donate Now...

We are now able to accept donations online using major credit card or a PayPal account.  The industry standard PayPal is a safe and secure way for PWSA of WI, Inc. to accept donations over the internet.

 

PWS Educational Materials

 

Communication with school personnel is critical to the success

of students with Prader-Willi Syndrome. 

Many thanks to Barb Dorn for her hard work on these very important documents!

 

Health Concerns for the Student with PWS - Information for School Staff

 

Information for Transportation Personnel

 

Food Security in the Education Environment

 

 

PWSA of WI, Inc. was established in 1992 by a group of concerned parents of children and adults with Prader-Willi Syndrome. The organization is governed by seven Board of Directors members who are elected every two years, and employs a part-time Program Director and a part-time Program Assistant.  In addition, the organization relies greatly on the volunteer efforts of its members. 

For questions or comments about this website, or to report a problem, please contact the Web Manager.  Resources listed on this website are provided for informational purposes only.  PWSA of Wisconsin, Inc. does not endorse any particular therapy or provider.  Be sure to talk with a trusted physician about what interventions and approaches are most appropriate for your child or person with PWS in your care.

 

PWSA-WI Website contents copyright © 2012 Prader-Willi Syndrome Association of Wisconsin, Inc.

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